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Evento WoP

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EL DISCO AVANZA. SIGUE EL RELATO DE LA HISTORIA Y LA GRABACIÓN DE "SIGUE PINTANDO" EN NUESTRO BLOG: http://walkonproject.blogspot.com/

 

Lee la crónica de la 2ª etapa WoP-Cimas en nuestro BLOG

REPORTAJE EN TELENORTE : http://www.youtube.com/watch?v=GOd9FXIUMuQ

Bilbao, agosto de 2010.- Superada la primera etapa (subida al Gorbea el pasado 17 de julio), los amigos y miembros del proyecto WOP (Walk On Project) han organizado la subida al monte más alto del Pirineo Navarro: la Mesa de los Tres Reyes.  La cita será el jueves 5 de agosto, a las 8.00 de la mañana, desde el Refugio de Linza. Con esta ascensión WOP cumple su objetivo de conquistar montes, gradualmente más altos, hasta llegar al Everest. Y todos lucirán la bandera WOP como testigo de la hazaña.

 Los 2.442 metros de la Mesa de los Tres Reyes (Hiru Erregeen Mahaia) son un reto para esta segunda etapa, aunque la cima es accesible también para aficionados. Este monte, en el Valle de Roncal, es un destino clásico para los montañeros pirenaicos por sus hermosas vistas.

 

Nota de prensa

REPORTAJE EN TELEBERRIhttp://www.youtube.com/watch?v=UDpIjeTRzwc

Bilbao, julio de 2010.- Este sábado 17 de julio el reto está en la montaña. El proyecto WoP (Walk On Project) ha organizado una excursión al monte Gorbea que culminará con la llegada a la cima y una comida para todos los asistentes. Es la primera etapa pero no la última, ya que WoP espera conquistar otros montes, gradualmente más altos, y llegar al Everest. En todos, la bandera con la imagen de WoP será testigo de la hazaña.

 

Esta subida al Gorbea es apta para expertos montañeros y gente más sedentaria. “Lo importante es pasar un buen día. La cita será a las 10 de la mañana en Pagomakurre. Y la comida a las 14.30 horas”, señala Mikel. “Quienes sólo quieran venir al plan lúdico-gastronómico puede sumarse cuando quieran. Cada uno que traiga algo para comer… y a compartir”.


Last Updated on Monday, 23 August 2010 12:02
 

The origin of the project

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The Walk On

Project is an initiative launched by the family and friends of Jontxu, a marvelous boy afflicted with a rare disease. The objective is to raise funds for RESEARCH INTO TREATMENTS for leukodystrophies through the organization of musical activities and events.

On October 13 2008, our wonderful 6-year-old Jontxu (Johnny) was diagnosed with a neurodegenerative disorder—one of those “rare” genetic diseases. It was a bolt out of the blue; nothing had warned us of the damage he’d already sustained. Until then (and afterwards too), Jontxu had been an outstanding child, a wonderful son, loved and admired by friends and classmates, affectionate, with an enormous capacity for enjoying the small things of life—a happy boy who knew how to make others smile and laugh. An angel.

That October 13th—just yesterday—our life veered off course hurling us into unknown territory. There was no time for lamentations; what we needed to do was pick up our gear and find a new route up the hills ahead to keep Jontxu alive. And with the help of others, that’s what we did. Today, Jon is still with us, fighting with all his might to enjoy each moment, each small blessing despite the enormous limitations imposed on him by the disease. Many people have joined us on the way. Dozens of impossible “gifts” have been showered on us, enabling us to achieve the best of all feasible presents. Real angels have accompanied us, old friends, new friends, scientists, doctors, impossible people, incredible situations that strengthen our belief in people’s inexhaustible capacity for love. And EVERYONE, absolutely ALL of us who have shared this road have been, and are being, enriched day by day by Jontxu and what his life means to us.

But our climb has only just started. We have saved his life, but we’re hoping for much, much more. What we hope is that some day there will be fewer bar-riers between Jontxu and the outside world so that he can enjoy each minute more intensely. To make this happen, we have a clear objective: to find effective treatments that can “fix” the damage caused by these dreadful diseases: leukodystrophies. All of us on this road feel the same pain, but we also share hope, optimism, the capacity to benefit from small things, to feel affection, warmth and tenacity. Together, everything is possible.

For Jontxu’s case is not the only one. There are many, many more, although it doesn’t seem that way—not until you come into direct contact with them and meet them face to face.

Mikel (Jontxu’s dad), used to play in a rock band. Music has always formed an important part of our family’s life. And now, music is helping us again, through songs that, in a special, privileged way, make it possible to express pent up feelings. So the idea was formed to join forces on this road of ours through music, giving rise to “The Walk On Project”, a non-profit association named after the first song Mikel composed—“Walk On”, expressing something of what he’s felt during these months since Jontxu was first diagnosed. The song and the project are a battle cry, a declaration of unconditional commitment, of optimism born of intense pain, of commitment to live and enjoy life through the small things, step by unfaultering step… The song expresses the values of the Project.

Mentxu and Mikel (Jontxu’s parents)

Last Updated on Tuesday, 27 July 2010 10:16
 

Contador amig@s

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There are no translations available.

 

DATOS ACTUALIZADOS

(04-08-2010)

YA SOMOS:

206

AMIG@S

 

Y LO QUE PARECÍA

IMPOSIBLE LOGRADO.

enhorabuena a

tod@s!!!!!!

 



 

Last Updated on Wednesday, 04 August 2010 11:17
 

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